Lovely Disease

The other day I was feeling so good, I had been feeling good the past coup;e of days. I even took Hunter to a Moms Club event. He had a blast, so when we were invited to go again I thought it would be so much fun. I could spend time with Moms around my age and the same things with Hunter, getting that social interaction. We were both having a really good time and then it came out. It's not like I didn't know it was there, its awalys there. But never the less Lupus still felt the need to say Hello! I'm here!!!!

Sleep or Wake

I used to go to sleep excited to wake up for a new day, and wake wanting to go back to bed for a few more minutes.......now I stay awake because I'm afraid to fall asleep. I never know how good or how bad my day will be. Even right in middle of the day sometimes. So do I wasnt to stay up, go to sleep, or wake up??? Weird

Downstairs Bathroom

I painted the bathroom in one day. I thought at the time I rocked it out! It went from a baby blue powder, old chipped paint to a neutral tan, and very white white trim. I thought it smelled great and looked great. Once it dried was a different story. I found the reason I do not own my very own painting business - pretty much because I suck at it. I figured out what and where I went wrong. Now i am going to sand and touch up. Its been about a week now since I started the project. Working that one day on it took me out for about 2 days. I've slowly been regaining my strength. I couldn't take Hunter on a playdate today because I'm still not up to par after the bathroom.. I hate being sick! I hate looking fine, and screaming inside with pain. Just because I look the same I should be able to do the same, at least thats what I think, so to not be able to finish painting in the same day let alone week has been a hard reality check for me. Before Thanksgiving thats what I want, to have it done before then.

Cheerleading

Yesterday I dropped my girls off at their first cheerleading practice and I was a little freaked out. the coach looks like a skeloton, had a huge oddly shapped hat, sunken in black eyes. I at first thought that maybe her makeup was smudged or she had been crying but as I looked closer I realized that that was the color of her skin!!! I told the girls if they were too scared to stay they could come home with me - they just laughed and told me to go ahead and go. Tonight I dropped them off and Mia was trying to explain to me that its a shadow because her eyes go inside her head so much..............either way. She is creepy looking. And yet again I left my girls with her :O

Back again

ok so I step away for awhile and I come back with a plethera of items in my noggin... like that use of words???? We are the Three Amigos.....:)   Update, Barbra living with us went from worse to unlivable. We moved into our new house - F A B O U L O U S ...... she had another seizure, she lived on the couch, on Steve's birthday she drove herself 2 hours to the casino and had another seizure, she's been in the hospital 2 hours away ever since. They found an infection in her brain. Took the piece of skull out that the infection was on and now she wears a helmet. She will be released and sent back to our house in 14 days.........Very glad she is still alive and in somewhat better health. Very hopeful her entire situation will turn in a different direction very soon.